Personal experiences of coccyx pain in 2000

How to find experiences like your own

There are more than 2,000 Personal Experiences here, and it can be hard to find exactly what you want. Here is a way to search through them.

Personal stories can be very helpful, but they may not give a true picture of the success rate of a treatment. See the Treatment section for more accurate information on success rates.

Christine - Coccydynia since a teenager

Gogooky - Lidocaine patches for pain relief

Adele D Meyer - Update - Coccyx removed after 9 years of pain

Carol - Chiropractic Logan procedure worked

Connie - Coccyx surgery - 2 days ago - Optimistic about success

Greg Thibeaux - Update - Eventually had coccyx removed

Penny H. Craig - Coccyx pain during and after childbirth

Jennifer E First - Success - Almost!

Karen Ramaley - Surgery and after

Jenny Rogers - Clear Passage, horse riding

Edie Countryman - Pain after Fall

Barbara Anne Barnes - Sharing

Brenda - Pain just to the left of the tailbone/Massage therapy?

Louise - Partial coccygectomy, but no relief

Mary Bisagno - Update - Pain started in pregnancy, had coccyx removed

Les - What kind of pain?

Jackie - Levator ani syndrome/vulvodynia

Anonymous - Hysterectomy, cortisone shots

Anonymous - Pain returned

Tawnya L Antonio - Missing coccyx????

Susan - Tail bone shaped like a V - now removed

Michelle - Does anyone have menstruation problems due to coccyx injury?

Kathryn - 10 days post-op and doing fine

Margie - Surgery scheduled - but chickened out

Gill - Coccydynia, childbirth and pain relief

Sally Cowell - Fish oil cured muscle pains

Christine Fitzgerald - Physical Therapy May Help!

Anonymous - Recurring coccyx and related pain

Atul Vaydia - Will it get worse?

Anonymous - After many years of pain, got relief from 'Clear Passage' in Florida




Coccydynia since a teenager

Christine - ChrstRig@aol.com

Hi my name is Christine. I am 27 years old and I have suffered with my coccyx since I was a teenager. I was finally diagnosed as having chronic coccydynia in November 1998 after a long battle of trying to get somebody to take notice of me.

I have had various treatments since I was diagnosed. First of all my orthopaedic consultant gave me three cortisone steroid injections but they did not help me any so she referred me to a consultant orthopaedic surgeon who decided that he would give me internal manipulation through my rectum and another injection. Not only did this fail to work it also made me worse and I started getting pains down both of my legs. I have had acupuncture, physiotherapy various dugs I have tried a tens machine and I am waiting to try a tse machine (Transcutaneous Spinal Electroanalgesia: they have a website www.xpain.co.uk) . I have also seen aromatherapists, reflexologists, and chiropractors but nothing helps me.

I find dealing with day to day life such a struggle because of the constant ache and pains. I cannot drive any more, I cannot go out socially and unfortunately I even get pain when I walk.

It is so frustrating because what information I have found out so far off the internet contradicts what my consultants are telling me, and I feel that the people here in the North East of England have not got a clue on how to deal with this problem.

I was told by my surgeon that there is no way that he would remove the coccyx because in his opinion the risk of it making me worse was to great, but he had only come across this procedure twice and I cant help think that there are more qualified surgeons out there that may be able to help me. I am finding myself getting more and more distressed about this because in today's technology I cannot accept that they cannot do anything for people like us.

thank you Christine

Please put my e-mail address on so people might be able to write to me.

Thanks Christine ChrstRig@aol.com

Updated 2000-12-17




Lidocaine patches for pain relief

Gogooky@aol.com

My wife damaged her coccyx from a fall. She has been suffering from degrees of pain from uncomfortable to severe. Sleeping is really a problem. Amitryptiline and currently neurontin have had a small impact on the pain.

Recently while visiting our son we discovered Lidocaine 5% patches. It comes in approximately 6" by 3" sheets. We've cut the sheets into 3 patches. Apply at night-time directly to the pain area and it has had limited but measurable effectiveness. She slept last night for the first time in several days without the patch and had a horrible night.

Lidocaine is available by prescription. I don't want this to sound like a commercial but these patches have afforded my wife some less painful sleep time. She tried the 5% last week and we know that there are also 10% available.

Note from Jon Miles:

Lidocaine is also known as Lignocaine. It is a local anesthetic, given as an injection,  or a cream or patch for applying to the skin.

More information is given  on this site. Another site says, about the use of these patches for shingles (postherpetic neuralgia):

"More effective and better-tolerated therapies for PHN are greatly needed and topical lidocaine patches appear to offer a solution," Dr. Galer said. "This topical lidocaine patch, Lidoderm, for the treatment of PHN provides several distinct advantages over currently used oral agents, such as the tricyclic antidepressants, anticonvulsants and opiates. "The patch does not cause any systemic side effects, does not require dose titration and is simple to use. Due to its proven efficacy in trials and its safety profiles, topical lidocaine patches should be considered as a first-line therapy for PHN, especially for the elderly"

Updated 2000-12-16




Coccyx removed after 9 years of pain

Adele D. Meyer, Houston, Texas - ameyer8662@aol.com

Telephone (281-586-9208)

Nine years ago I had quite a few kidney related procedures and then major surgery to unblock the ureter. Two months later the doctors found a few fairly large cysts on my ovaries, which resulted in a hysterectomy. For my last surgery, I had a spinal block resulting in a week long headache. I don't know if that had anything to do with my coccyx starting to hurt or not but about 2 months later, overnight, I started to notice the pain. It never left. I had the usual tests run such as MRI, Bone Scan, Plain Xrays, Nerve Testing and Colon and Rectal Exam. Nothing showed up.

For treatments, I used accupunture, physical therapy (manual manipulation of the coccyx and stretching exercising ), anti inflamatory pills, coccygeal neurolytic ganglion impar block, steriod pack, and one cortisone injection in the doctor's office. Nothing seemed to make a difference. To control the pain sitting, I used a Tush Cush ( a wedge cushion with a V cut out the back) all the time. You can order them from the Solutions Catalog at 1-800-342-9988 or www.SolutionsCatalog.com #8666, $39.50 This saved my life over the years. I have a nerve condition in my feet so standing is also hard. I am so thankful that I don't have to work at an outside job or I don't know how I would have done it.

Over the nine years, I have seen many orthopedic doctors, some said that they would do the surgery (coccygectomy) and others said they wouldn't. That really confused me and made me withdraw from going ahead with it. However, a few months ago around Feb. of 2000, a family friend, who is also a family doctor, noticed this web site and brought it to my attention. I started reading everybody's stories and it moved me to begin going to doctors again to get their current opinion of the surgery.

Sept. 6, 2000 (Surgery day)

He performed surgery on me on Sept. 6, 2000 and said that I had a lot of inflamation in that area and that my condition should improve. The surgery didn't take vey long at all. I was the first one of the morning and I was back in my room by 11:00 A.M. Only stayed in the hospital over night and I was ready to come home.

Sept. 18, 2000

Ever since the surgery I have had to be on pain medication, 2 Vicodins per day. I was hoping that by now there would be more healing than has taken place but I realize that this type of surgery takes a long time and I normally have a low tolerance to pain after surgery.

Adele D. Meyer

Updated 2000-09-18




Chiropractic Logan procedure for coccyx pain

Carol - carscho@ix.netcom.com

To all concerned:

I have been suffering since Feb from a fall with my coccyx pain. I first had an adjustment from the chiropractor and he told me that there was a procedure that he could do which was an internal adjustment of the coccyx. It didn't sound good to me but as the pain continued without any relief and seemed to be getting worse I finally gave up the ghost and 2 days ago I went to him and said, "Please perform this internal procedure".

He went in and was able to physically move the coccyx, I could actually feel it move into place. Within 12 hours I was feeling so much better, it has now been 36 hours and I can for the first time in 5 months sit on the chair without pain. So believe me if you find the right chiropractor and is familiar with this procedure it is called The Logan procedure. My chiropractor says that he has only had to perform it 4 times in the 12 years that he has been in practice but all 4 have had great success. I was in amazement as to how quickly I had the results.

Updated 2000-08-01




Coccyx surgery - 2 days ago - Optimistic about success

Connie - ConHaddock@aol.com

My daughter, age 14, has been having coccyx pain for approximately 2 years. Thinking it was from a fall, she had an x-ray in April, 2000. Her doctor did find an old fracture and sent her to a spinal surgeon to see if anything could be done. This doctor told her that he did not believe her pain was from the fracture, but from her coccyx having a 90 degree angle. He suggested surgery, but advised he was not aggressive about the surgery since he could only give her a 75% chance of relieving the pain. He told her if she might want to consider learning to live with the pain using sitting aids, but if she wanted the surgery he would do it. There was no way she was going to take a donut to sit on at school and that is where she had the most pain from the desk seats.

She decided that even a 75% chance of no pain or less pain was worth the risk of the pain from surgery. She had the surgery 2 days ago and is doing very well. The doctor told us after the surgery that her coccyx was intermingled in her small intestines and into her pelvis. He told us that she made the right decision by having the surgery because with what he found, her condition would have only got worse and she could have had problems with having children. He is very optimistic about her recovery and said he understood why she was having such pain and why she was anxious on trying the surgery.

So far of course she is having pain from the surgery, but even after just 2 days she can tell the pain is diminishing. I will keep you posted on HOPEFULLY her success.

Thanks for your site. She was able to have contact with other success stories and it helped her with her fear of surgery.

Connie

Updated 2000-06-11




Eventually had coccyx removed

Greg Thibeaux - GregThibeaux@cox-internet.com

My name is Greg, and I've had a pain in my coccyx since mid 1997. It wasn't caused from a single fall/accident, but from the repetitive motion of bouncing up and down on a riding mower.

This is not a real common problem, but I sure wish that the people around me could somehow know how it feels (especially my boss). He seems to be embarrassed by me, or I guess he just considered me to be wimpy or something.

I had 5-6 different injections (2 in the sacra-coccygeal ligament, 3 in another area nearby), all with no improvement. I went to physical therapy (adjustments to coccyx and whatever that machine is that they hook you to, with the little nodes), with no help. I sat on all of the donuts available. I tried medication (daypro, anti-inflammatory), also with no results.

I finally saw a spinal specialist in Houston, Texas who does coccyx removal routinely (5-6 times a year). He says that for pain in the coccyx, if it doesn't heal in 6-12 months, it won't heal. You have to remove it. My pain has been for 2 1/2 years.

After he removed it, my doctor said that my coccyx was all twisted. Instead of pointing down, the bottom of it was twisted back up to the sky. He said that I should notice an incredible improvement and I have. My hospital stay was 1 night, and was pretty easy as surgeries go. I expect to be back at work after missing 3 weeks.

12 days after surgery I do have some pain, but I really do believe that the old pain is gone, and that the new pain will go away in time. It is maybe a little bit worse right now than before, but I do feel good about the decision thus far. After 2 1/2 years, you sort of learn to be cautious about thinking that you've found the solution.

If you've had this type of pain for more than a year, it is probably not going to go away. In reading the personal experiences on your website, it gradually seemed to me that the only people getting any improvement were the ones having it removed. Therefore, I decided that this is what I needed.

Finally, if anyone wants to email or call me, that's fine. My home phone is (318) 641-1565.

Thanks again. Greg Thibeaux

Note from Greg added a few months after surgery:

I am not any better than before my surgery. Pain, as you know, is sometimes hard to judge. I basically feel like I did before my surgery, only now I have the added pains from healing from the surgery. They are, of course, much less than when I first had the surgery. I'm strongly questioning whether I ever needed this surgery. A doctor that I saw before seeing the surgeon who performed my surgery said that he didn't think that the problem was my coccyx. He actually examined me, whereas the doctor who did the surgery barely touched me when he examined me on my pre-surgery visit.

Updated 2000-06-10




Coccyx pain during and after childbirth

Penny H. Craig - phcraig@twave.net

I was delighted to find your web site. I only wish I had found it sooner. I had my coccyx removed on April 19, 2000. This was an outpatient procedure performed by Dr. Alfred E. Geissele, MD of Carolina Orthopaedic Specialists in my hometown of Hickory, NC. He is a spine specialist. He was referred to me by my OB-Gyn, Dr. Laura Faruque.

On February 10, 1999, ten days before I delivered my second child I got an excruciating pain in my tailbone when I was getting up from the toilet. This continued for hours and I called my OB-Gyn to tell her about the pain. She felt like it was the baby and told me to soak in as hot of water as I could stand and to use the heating pad. By the next day I could hardly get up, much less walk. This continued until I delivered my baby on Feb, 20, 1999. I absolutely thought I would die during delivery. I had hard fast labor and did not have time for drugs.

Afterwards, my Dr. gave me medication for the pain in my tailbone. After my 6 week postnatal exam, she referred me to the orthopaedic Dr. because she did not know what was wrong. My tailbone was not broken and the pain killers were not working. X-rays with Dr. Geissele on April 24, 1999 did not show much. He thought I was maybe developing some detereration of the tailbone or joint and ligaments connecting it to the vertebra. He gave me a shot of cortisone and some pain medicine (relafen).

On May 24, 1999 I was still taking medicine, but it was beginning to upset my stomach. The cortisone shot helped for about two weeks and the pain medicine wasn't helping. On June 23rd, I had another shot of cortisone. It did not work at all. Dr. Geissele told me I needed to have the tailbone removed. I was in pain when I sat for any length of time, driving was hell, sitting in church or the movies would aggrivate my tailbone for days or weeks. I was even having trouble when I lay on my back. I could not comfortably sit and feed my baby a bottle.Walking, running, and aerobics never bothered me.I did these activites on a regular basis.

I told Dr. Geissele I wanted to wait and see if I could heal with a little more time. He completely agreed to let me tell him when I was ready for the surgery. In August of 1999 I tried another inflammatory drug, naprelan, it seemed to work for several weeks, then it began to upset my stomach.

Finally, when my daughter was 1 year old, February 20, 2000, I decided I had had enough. I called Dr Geissele and we decided to do the surgery on April 19, 2000. I began to get scared when he told me he only did about 1 coccygetomy a year. He said it is a rare surgery and one that is done as a last resort.

The operation took about and hour and a half. My coccyx was curved upward and the joint and ligament showed signs of detereration and trauma. He feels sure my daughter pushed the tailbone upward when she dropped before being born. During delivery he feels like she pushed it the opposite way. During this time is when he thinks the damage was done to the joint and ligaments. The tailbone then returned back to the upward position. He said I would be a new woman once I was healed. Afterwards I had complications of bleeding and he had to pack the wound. He put me on antibiotics as a precautionary. I never developed an infection. I bleed for about 4 days afterwards.

I was on morphine for a week after the surgery. I saw him three days after surgery, then again four days later, then two weeks later. On the three week visit, he said I was healing wonderfully. He had been worried because of the bleeding. I have been on Darvocet since being taken off the morphine. It has now been a month since the surgery.

I still cannot sit more than 5 minutes at a time. I cannot drive yet. I could not do anything by myself for at least two weeks. I could not get out of bed by myself or bend good. I am doing much better now. The pain I had before is gone, but the pain now is different. He said I still had another 3 weeks before I could sit comfortably. I feel like I am taking one step forward and two steps back. I still seem to be very slow. Some days are better than others. I'll let you know how I progress. I do, however, feel like at this time I have done the right thing.

My Dr. is wonderful and I would reccommend him to anyone. So far things have been going well. I just hope this does the trick.

Penny H. Craig

Updated 2000-05-16




Success - Almost!

First, Jennifer E - jfirst@kpmg.com

I severely injured my tailbone after childbirth. The minute I was transferred to a wheelchair to go to my room I knew there was a problem. The nurses and doctors, deal with all different pain thresholds and I was told it would be fine (and to stop complaining!). Meantime they give me a wood rocking chair to nurse my son on!

Another 18 months went by with repeated visits to my doctor. His advice, without examining the coccyx once, was to sit on a donut pillow and it will eventually heal. He declined to send me to physical therapy saying, "they couldn't do anything for me". I finally changed doctors and went to physical therapy.

My therapist did much research on the subject, including this site and suggested internal mobilization. I tried several times myself but could not locate the coccyx through the tissue. My therapist called in another who had done the immobilization several times, with different outcomes. I was desperate to try anything. With her internal procedure, my coccyx literally popped back into place! Within seconds I had 80% relief. The only remaining pain is apparently caused by damage to the tissue and tendons in the surrounding area. I am continuing strengthening exercises to build the area around the coccyx, while abstaining from vigorous impact and kegel-type exercises to try and maintain the coccyx's position. The therapist has had temporary to permanent corrections using this method. Wish me luck.

Updated 2000-04-19




Surgery and after

Karen Ramaley - Kram725147@aol.com

Date: 2000 February 17

I have been suffering with my tailbone pain for 2 years now. There is no known trauma to the area it just started to hurt and continues to get worse.

My primary doctor basically blew me off, he never examined me and told me to wait it out. So, I did for about three more months, he then sent me to an orthopedic doctor that did an MRI and bone scan to rule out a tumor. He suggested surgery. After three months of deciding, I then went to another physician who recommended cortisone shots. I had a total of six, and they did help for about seven months.

I am now in extreme pain all the time. Unable to sit at work for very long, driving hurts (my commute is two hours a day). I now wake up at night when I roll over, laying on my back is the most painful.

I went back to the original orthopedic doctor and agreed that enough is enough and have decided to get this taken care of. I have to admit that reading all of the personal recovery stories has me concerned as I do not know the outcome. But, I don't think I can continue with the pain I am in now.

I will keep you all posted after the surgery. Wish me good luck!

Karen Ramaley Seattle, WA

Update:

Well, I made it through the surgery! Today is day five of recovery and so far so good. I was hoping that I would be able to sit down by now, but to painful. I am taking my self off of the pain pills starting today, mainly because I get to jumpy being on percocet, so will see how that goes. The surgeon was surprised to find a bone spur on the coccyx. Has any one ever heard of this?

The surgery lasted about one hour and I woke up pain free - due to a spinal block that the anesthesiologist gave me. This was great, but it does wear off and then the pain hits. The first night was the worst, but I waited until the pain pills completely wore off before taking more, then it would take about an hour before they fully kicked in, finally a nurse informed me to take them every three hours and that worked much better.

Does any one have suggestions on what to sit on to help relieve the pain? Call me crazy, but I am due to fly to California on March 22nd and I really do not want to cancel, but worry that I will not be able to sit for the one hour and forty minute flight - any suggestions?

I want to thank every one for their emails prior to my surgery, it was very thoughtful and much appreciated. If you would like any more info regarding my surgery please feel free to email me.

Sincerely, Karen Ramaley

Second update:

Well, it has been almost five weeks since my surgery and I am doing great! I returned to work today and am able to sit for about 45 minutes at a time. I still have some discomfort when sitting for longer periods, but it is nothing like the pain I experienced prior to my surgery. I am now driving, which is such a relieve not to depend upon others to drive me, I can endure about 45 minutes before becoming to uncomfortable.

I have found that sitting on a plane was painful, thank goodness it was a smooth flight and I could stand. I still cannot sit in a movie theater, those chairs are very uncomfortable and I last only about five minutes. So, movies and flying will have to wait a while longer.

The only post-op problem that has occurred is that the incision ripped open and the surgeon and I decided to let it heal on its own (the other option was to go back into OR to re-open then re-close - my response "NO WAY!") and it is healing very slow and has become infected so I am now taking antibiotics and hope that it continues to heal on its own.

I want to say that I am a success story, but want to wait until the pain from surgery is gone and then see how I feel. At this point I am very glad that I had the surgery and do expect a complete recovery and to live pain free.

I will keep you all posted on how my recovery goes and feel free to email any time.

Karen

Updated 2000-04-05




Clear Passage, horse riding

Jenny Rogers

My coccyx pain came on suddenly without a prior injury. Like most of the people who have contributed to your website, I have tried just about everything. I keep a journal of the doctors I've seen and the treatments I've tried. I think the biggest thing I've learned is that doctors know very little, and not just about coccydynia. I hopped on a plane and spent a week in Florida at Clear Passage Therapies (May 1999) for myofascial release therapy - I was the one who told them about your website and urged them to check it out and/or contact you. I was pleased to see them listed as a resource on your site while browsing this afternoon. They are "good people".

I now believe my problem is caused by scar tissue. A week in Florida was not enough to cure me, but they did as much as they could. For several months, I saw no improvement though I felt the trip taught me a great deal about my problem. Now a year later, if I look at the pain levels week to week, I see little or no improvement, but if I compare my pain now to a year ago, especially before I went to Clear Passage, I see a large improvement, perhaps 80%. Once I couldn't drive a car for more than an hour without punishing pain for up to two weeks afterwards. Now I can drive those 2 hours (I don't push it longer than that) and while I might ache a bit, it doesn't last long. I can also get through an 8 hour work day at my desk, though I carry a Tush Cush with me to work and for the car. At home, I don't need it. I saw significant improvement with physical therapy, but only as long as I worked out very hard nearly every day - once I stopped, the pain came back. I continue to work out as much as I can, however, because I think there are long term benefits - and it never hurts to stay in shape.

It took me a while, but I found someone an hour from me who can do myofascial release therapy - he refers to it as Active Release Therapy also. I've had 4 treatments so far and have seen some improvement. It's slow going and oh so frustrating, as you well know. But I feel like I am leading as close to a normal life now as possible.

After resigning myself to the possibility of a permanent condition, I decided to stop allowing it to prevent me from doing things I wanted to do. I own a horse and hadn't ridden in a year and a half since it started. So I designed a saddle pad in August 1999- it's a wishbone shape, sort of like a bike seat with the narrow end in front and splitting off as it moves back. Your seat bones rest on the two pieces so that your sacrum and tailbone are suspended in mid-air. I found a company that designs foam cushion pads that reduce jarring and got them to cut their material according to my design (they didn't charge me for more than the original material either!). Then I got a tailor to make a strong cover (since it will be tugged on quite a bit from the riding) padded with cotton and attached with velcro straps here and there to secure it to my saddle. I can now ride up to one hour without pain. I might get a little achy towards the end, but the important thing is there is NO residual effect. Like you, when I aggravate my condition, it will punish me for days or longer. With this, there is no flare up of pain. People think I should patent my idea, but I'm not sure there are many equestrian/coccyx pain sufferers out there. Ha.

I was distressed to read that you had undergone surgery to remove your tailbone, fearing that it would make you worse. I sincerely hope that it gives you your life back - you have suffered much more than I, and I can't imagine how you've endured it. If you do reach a point where you are significantly pain free, I hope you will continue to monitor it carefully - in other words, P.T. or massage or even myofascial release. I'm sure you will of course!

Thank you, good luck, take care and God bless,

Jenny Rogers

Note from Jon Miles: See also Horse riding for people with coccyx pain




Pain after Fall

Edie Countryman - ediemae@attglobal.net

I fell backward off my bike, first landing on my tailbone and then hitting my head. My head hurt so bad (I had a concussion) that I did not worry about my tailbone at the time of the ER visit. Now, six weeks later, I continue to have tailbone pain with sitting, and it hurts when standing up after sitting for a long time. In addition, when I sit on my tailbone in a certain position, I can feel something move around, like sitting on a big pebble and rolling off, especially when sitting on a hard chair.

I really like your website, but haven't read anything from anyone else that describes this feeling. Has anyone else out there had the same feeling, like a crunching feeling sometimes when sitting on the tailbone. Could this mean it is broken off, and am I making it worse by sitting on it? Haven't gone to the doctor for it yet, but don't think I can take the pain much longer.....

Edie Countryman

Updated 2000-03-30




Sharing

Barbara Anne Barnes - barbara@hamptons.com

I can't tell you how excited I was to read this website about coccydynia. I know that sounds wierd but I thought I had something wrong that no one knew about. I have Muscular Dystrophy and I sit in a wheelchair at least 16 hours a day (or at least I used to). I have been in excruciating pain for 6 months. Tried physical therapy 2 days a week for about 4 months. It felt good while there but pain returned immediately. Now I am receiving acupuncture, novacain injections and recently an injection of Dextrose. This therapy has just started so it is too soon to tell.

The only thing that has helped, the only time I am close to pain free, is with vicodin. I am so depressed. The pain is so severe that it often drives me to tears. I can only sit for a few hours at a time and that is with pain medication, ice packs and a tens unit. Would love to hear from anyone who shares this horrible pain. Thanks for a place to share!!!

Barbara Anne Barnes

Updated 2000-03-30




Pain just to the left of the tailbone/Massage therapy?

Brenda

I am a 33 yr old mom, three kids (14 ,13 & 6). Almost two years ago this pain started. It feels like a deep bruise just to the left of my coccyx or sacrum area. I have pain while sitting and upon rising to a standing position. I am unsure if any one thing triggered all this. Depending on how much I have aggravated the area the pain tends to move toward my coccyx but never to the right side. I have pain even while sitting on a soft surface. I also experience increased pressure/pain in the area just before and the first couple of days of my period. Kegels[*] can bring on pain also. X-rays, MRI, have all been negative. I had two shots of cortisone while under X-ray, very painful, but the pain in the original spot never left.

Just recently I had the sitting/standing X-ray, It showed my coccyx is stable.

That is good news but I still had no answers for the pain. I then found the Pain and Posture clinic in North Carolina on the web. I called and talked to the person there who stated they have had a lot of success with treating similar symptoms thru Massage Therapy. I have contacted a certified Massage therapist in my area, Central New York. We met, he examined me and seemed confident ( alas; with no promises) that he could help get the pain to a manageable degree if not gone entirely. I am trying to think positively and will update with any progress, positive or negative. (the Clear passage website was also helpful with information). If any one has any thoughts on this I would like to hear from them.

Hang in there everyone!! Brenda

PS Thankyou so much to Jon for this site and all the comfort and information it brings to everyone!!!!

* Kegels are exercises of the pelvic floor

Updated 2000-03-28




Partial coccygectomy, but no relief

Louise

I suffered a very heavy fall onto the base of my spine when I was 5 months pregnant. The pain escalated dramatically after delivery (I had to have a ventouse suction as I was unable to push due to the pain in my coccyx). It then transpired that I had a fractured coccyx. I underwent 2 cortisone injections and manipulation before I had a coccygectomy as I couldn't stand the pain any longer. However, the operation has not made the slightest bit of difference and if I had not seen an x-ray with my own eyes to prove that they had indeed removed the fractured segment then I would not have believed that they had carried out the operation at all!.

That was 2 years ago and since then I have had intensive physiotherapy, ultrasound treatment on the scar, hydrotherapy, 4 lumbar epidurals, a Tens machine and am on an extremely high dosage of pain relief. I saw my consultant last week and he has said that he does not want to continue giving me epidurals every 3 months as it is not a long term solution and he has now said that he doubts my pain will ever decrease significantly and he has referred me to the "pain psychologist" to help me to "learn to live with it". However, as I was literally begging for another epidural he has relented and said that he will consider a final one after reading the report from the pain management clinic. I have found that the epidural is the only treatment that offers me a degree of slight relief.

I wondered if any other people have been in this situation and what they would advise. Also do you think it may be a good idea to broach the idea of having the rest of my coccyx removed? as they only removed the fractured segments? I really do not know what to do and I feel that unless you have experienced this condition then no one else can really understand. I felt so alone until I discovered your website and realised there are people in the same boat as me who will understand my feelings of despair.

I particularly have a problem with feeling guilty as my little girl is now 3 years old and she has never known me to be healthy. It hurts so much to have to say to her that mummy can't go to the cinema with her etc. etc. because I just cannot sit on the chairs. I have missed out on so many things with her and she is likely to be my only child as I really don't think I could cope with another baby in my state.

I'm so sorry to unburden myself to you all like this but nobody else would really understand. I would be so grateful for a reply regarding whether the idea of the full coccyx removal seems worth a try - I know you are not doctors but maybe someone else has been in the same situation. One last thing before I go (thank God for that!) has anyone got any tips on how to sit in the bath. I have not had a bath for 3 years and long to lounge in a tub full of bubbles. I tried sitting on a donut ring but it didn't help.

Updated 2000-03-24




Pain started in pregnancy, had coccyx removed

Mary Bisagno - karolinabelle@hotmail.com

Updates, January and March 2000

In September 1997 about 20 weeks (halfway) into my 2nd pregnancy I noticed that sometimes my tailbone area would start hurting after sitting for a while. When I stood up and relieved the pressure the pain was horrible, but after the initial pain I had no pain walking, exercising or standing. The pain was off and on during my pregnancy, but after my daughter was born, I had pain all the time.

When the baby was almost 3 months old, I called my doctor and made an appointment to see her. She didn't take an x ray because she said that even if my tailbone was broken or cracked there was nothing to do for it. Since I was exclusively nursing my baby the only drug she could prescribe was Ibuprofen. She gave me 800 mg up to 3 times daily. Of course that didn't even touch the tailbone pain. I had to give up nursing the baby in the rocking chair in her room. It hurt too much to sit there. Even in the middle of the night I would come down the hall to the living room to sit in the rocker/recliner which was wide enough for me to tuck my feet up and sit sideways on one hip while I was breast-feeding.

I decided to call my chiropractor. I love my chiropractor, he's done some wonderful things for my back in the past. His staff asked me to come on in. Dr. Keith tried two different treatments, including ultrasound therapy and again, neither one touched the pain. He offered to try a 3rd therapy, manual manipulation, but call me squeamish the very thought just grossed me out and I decided to live with the pain.

I believe my Daddy suggested an orthopedic specialist. I made an appointment with a doctor covered by our insurance and in August 1997, with husband in tow I went to meet Dr. Bruce Darden. I was sent for x-rays after a physician's assistant took my medical history. I explained that the pain was all the time while sitting and upon initially standing, but I was able to walk, stand and exercise just fine. When the doctor came in he asked a few questions and we asked him a few questions. Unfortunately, it was like pulling teeth getting an answer from him. When we asked questions he would just sit there ...... and the silence would stretch. Finally after some wrangling he laid out my options. A cushion to relieve the pressure. A cortisone shot or as a final resort, surgery. I explained that I was breast-feeding my 7 month old daughter and asked if the medication would affect my breast-milk. Dr. Darden said he did not know. I asked him to find out for me please. He let out a huffing breath and literally got up and stomped out of the room! My husband and I were floored. We just sat there and stared at each other, not believing that a supposed professional would act so childish. When he returned to the room I calmly explained that I had come to him for help and needed answers to my questions. As sole food supply for my daughter there was no way to have a cortisone shot if it would affect my milk supply. It was very important to me to continue nursing until my daughter was a year old. As it turns out cortisone does crossover into breast milk, so I did not take the shot that day. We did go to a wheelchair supply store and find a cushion with a triangle shaped notch cut out of the back to relieve pressure from the tailbone. The cushion helped a lot.

On December 22, 1997, I went back to the same office to meet a different doctor. Dr. Daniel Murrey was very nice and very patient with me and with my husband and with our questions. I left the office after receiving a cortisone shot and was pain free for close to 2 weeks. I went back in February for another shot which did absolutely nothing for me and in fact made me hurt worse. In April we went in to discuss surgery. We talked over the pros and cons and decided on early June for a surgery date.

On June 7th 1998 I went to Presbyterian Orthopedic Hospital in Charlotte North Carolina. The surgeons who treated me were at the Charlotte Spine Center (part of Charlotte Orthopedic Specialists). I received general anesthesia and the surgery lasted a little over an hour. I woke up with a horrible sore throat that lasted about 2 days (from the breathing tube they inserted) and even worse nausea from the anesthesia which lasted the rest of the day. They prescribed Vicoden for the pain. It helped a lot and made me sleep. My husband was home for 2 days before he went back to work. My grandmother spent the nights with us while he was gone and my mother came over from 1230pm until my grandmother came over around 9pm. I spent most of the days in bed for about the first 2 weeks. I had to lie on my side. They told me no bath for 7 days and to come back after 10 days to have the stitches removed. I took a sponge bath the day after my surgery (with a little help from my husband) and washed my hair in the sink. Just feeling clean made me feel better!

After 10 days, I went in and had my stitches removed. It was fairly pain free. I only felt a little tugging sensation. Dr. Murrey said the skin was healed. I could sit on my cushion with only a little pain. The main problem was sitting back in a chair which put pressure on the scar area and hurt.

After a month I started exercising again. I started out walking and progressed into floor aerobics. I couldn't do lunges or sit ups or anything lying down, but everything else was pain free.

We went on vacation (holiday) at the beginning of August. Although it was a pain to tote my cushion, we took it with us anyway. It was a big help on the four hour flight. I noticed though during the month of August, that I was able to sit better.

In September 3 months after my surgery, I was in my baby's room in the middle of the night. She woke up crying and a diaper change and drink of water didn't comfort her. I sat down in the rocking chair with her and started to rock her. After about 3 minutes I realized that I wasn't hurting!! I was startled but happy. (Haven't been that happy at 3am in a long time!) I drove about 30 minutes the next day to go shopping and was pain free. We took a 3 hour drive the next weekend and I was pain free!

4 months after my surgery, I am doing well. Sometimes I feel a twinge if I sit too long, but just the other day I realized that I am starting to take sitting down for granted again. (Boy, that didn't take long.) I have gone back to teaching aerobics classes again and on October 2, 1999 I competed in my first 5K road race.

My advice? Keep looking until you find the right doctor for you. Don't take no for an answer. Consider all of your options carefully. What worked or did not work for me may work for you. Above all, don't wait too long!

If you do decide to have surgery, here's some advice:

2000 January:

Just a quick update for you and anyone else who's interested. 7 months after my operation, I'm still doing well. No major pain to speak of. If I sit in a very hard chair for a very long time I might feel a slight twinge, but nowhere near the volume (don't know how else to describe it) of pain I had pre-surgery. No pain killers required. I would still recommend the surgery to anyone who asked. It's been the best thing for me.

2000 March:

Just want to let everyone know that there is some hope! 9 months post surgery, I'm doing great. I have been pain free since September 1999. (about 6 months now) I do have the occasional twinge if I sit on a hard chair or in a strange position for a very long time (I mean hours not minutes) but I don't have anywhere near the volume of pain I had before.

I also want everyone to know I have entered my first marathon! I'll be taking part in the Dublin City Marathon on October 30, 2000 in Dublin, Ireland! (competing as a walker)

So, there is life after surgery! I hope everyone who reads this will be encouraged! I am truly blessed to be back to normal. My biggest advice is don't wait too long to see a doctor. You may not need surgery, a different treatment may work better, just get treated and don't live with the pain. ( I sound like a commercial!!)

Good luck. I'm happy to answer any questions about my experience

I went for my annual exam yesterday. My Gyn doctor asked about my tailbone. (I initially called after Tori was born to find out if maybe my tailbone had been cracked or broken during her birth) I told him what happened and about my surgery. Apparently he has a couple of patients with the same problem. I also got an interesting bit of info.

A little background. Both of my labors were very short. I was in labor with my oldest for 2 hours 23 minutes. My second labor was 1 hour 30 minutes. When a woman has labor as quickly as I did (this is why I have 2 children not 3!) she may dilate a little larger. The baby enters the birth canal very swiftly and will push the tailbone out of the way sometimes even breaking it. So, my tailbone may have already been slightly out of whack with the first labor and the second pregnancy only intensified it. Also, (and I already knew this) sometimes when a woman has "back labor" with most of the pain in her back the baby may be born face up with the bony part of the head against the woman's back, thus the back pain, and the baby's head can break the tailbone.

Updated 2000-03-20




What kind of pain?

Les - LESTERIOTTH@cs.com

For about the last year I have this discomfort in my tailbone. Its not a pain but a discomfort like if I need to have a bowel movement. The discomfort is intensified prior to my daily BM. After there is some relief. I am 60 years old and I remember falling very hard on my tailbone while carrying luggage for my parents. I slipped on some wet concrete steps. This happened when I was about 28 .

The problem didn't seem to start until my wife bought me a new recliner. My old recliner supported me real good in my lower back when in a reclining position. My new one does not do that, there is a gap from my tailbone to lower back with no support.

Updated 2000-03-16




Levator ani syndrome/vulvodynia

Jackie - JACKSTEE@aol.com

Hello,

I read your website and am wondering if my pain could be due to my coccyx. I was diagnosed with interstitial cystitis almost three years ago, I soon got vulvodynia and mild fibromyalgia. After a year and a half of painful myofascial massage internally, I went to see a gyn who gave me trigger point injections in the pelvic floor. This helped a GREAT deal, however, my physical therapist (a pelvic pain specialist) feels most pain is due to back and coccyx, she talked me into doing a coccyx release, pushed on coccyx till she felt it move. I went into complete back and hip spasm and haven't been the same since. Vulvodynia got much worse!

Unfortunately, my gyn who was doing trigger point injections decided to a pudendal nerve injection, I wasn't aware he was going to this, as I had heard nightmare stories about it. This set me up for intense colon spasming, rectal pain and severe levator ani spasming. My muscles are now like rocks and the shots just make me worse. I soon developed coccyx pain after bowel movements, mild pain compared to the rest. I received some intense physical therapy around the perineal area which helped, but as soon as I have a bowel movement, my pelvic floor/levator ani go into spasm. My chronic constipation since childhood has gotten MUCH worse. I pretty much feel like I am giving birth to a donkey vaginally and rectally all day. Not fun for someone in their thirties.

Do you think the position of my coccyx could be causing the problems? I am wondering if I should go to a coccyx adjustment specialist I heard of. I heard this can be very painful.

I would love to hear from anyone else with this problem. Physical therapists in southern CA would be welcome. I recently started biofeed back, my rectal and vaginal muscle tension is almost off the charts.

Thanks...Jackie

Updated 2000-03-11




Hysterectomy, cortisone shots

lgoas@yahoo.com

I had a vaginal hysterectomy in July '99, and ever since then, I have suffered with coccydynia. Saw an orthopedic surgeon after all the hysterectomy pains had subsided and the coccyx area was still hurting. The first thing he did was x-ray the area (normal) and prescribed some weeks of anti-inflammatory drugs.

The next visit, nothing had changed, so he ordered and MRI, which showed inflamed tissue around the coccyx. At that point, he gave me a cortisone shot, which relieved about 95% of the pain for approximately 2 months. It is now 3 months later, and there is still some pain, especially on getting up from a sitting position (most painful after driving for even short periods of time). I don't know if I should make an appointment for another shot since the pain did get better after the first one. The second one might help get rid of it??? I meant to ask the doctor, but perhaps someone could answer my question: The coccyx itself would not show inflammation in the MRI, since it is bone, and also, since the MRI does not show bone structures as well as an X-ray. So what would the inflamed tissue be...ligaments?? Has anyone else had this experience?

Updated 2000-03-11




Pain returned

Amitoj2010@aol.com

I suffered from coccydynia about two years ago. The doctor asked me to apply heat on the affected region and it helped me a lot. But now the pain has returned.

I can't sit as it makes the pain worse. I cant study because this pain is always on my mind. I just drag myself to the classes. I think I am going to get my coccyx removed surgically.

Reply from Jon Miles:

It's worth trying the other treatments, particularly the injections, first. You might get relief with much less trouble and risk. Though I eventually had success with surgery, I'm glad I tried other things first.

Updated 2000-02-29




Missing coccyx????

Tawnya L Antonio - TAWNYAA@prodigy.net

Hello,

I have a strange question....I was in a serious auto accident, and since the crash I have had pain in my lower back. I went for many x-rays and the most recent said that my coccyx was missing at the sacrococcygeal junction. The x-ray tech wanted to know if I had ever had surgery ... which I have not. So he then suggested that there was a destructive lesion in this region. Does anyone know what this means in plain English??

Tawnya

Reply from Jon Miles:

I think that 'destructive lesion' here will mean that at some time damage to the coccyx caused by injury or disease caused the bone to be absorbed by the body. But you should check with your doctor. Another possible reason for your coccyx being missing is that you never had one. People are born with bits missing or extra bits, and the coccyx varies greatly in size and shape between different people.

Updated 2000-02-22




Tail bone shaped like a V - now removed

Susan - Srf430@aol.com

I have been suffering with pain in my tail bone for about three years now and I am not sure why it began. I have tried cortisone shots, nerve blocks and a chiropractor but nothing has offered permanent relief. I mostly have pain when sitting back and getting up from a sitting position. The worst is when I am driving and getting out of the car. I am in the car about 1-2 hours a day. My x-rays show that my tail bone is shaped like a "V" instead of having a gradual curve. Possibly it broke and fused back together that way. The surgeon is going to remove part of the tail bone, he said it is about two inches. I put off even thinking about having the operation because I have been told by two other doctors that is a very risky operation since your tail bone is so close to the rectum so there is the potential for so many complications.

I then found an orthopedic surgeon who seems very confident to do the operation and said he has done about 7 or 8 or eight of them with great success. I am still nervous about it but I'm tired of being in pain.

Susan

Surgery Update

2000 March 16

I had my surgery almost two weeks ago, on 3/3/00, and I am starting to feel much better! I still have pain from the surgery so I am not sitting back in a comfortable or relaxed position but I can sit forward without being in pain.

The surgery went well, it took about 45 minutes. I did not have any sutures to be removed but I had internal stitches that will dissolve within about six weeks. I had it done in an outpatient surgery center but I still stayed overnight for a "23 hour observation stay". I am really glad I stayed overnight since the anesthesia made me sick and it would have been difficult to get in the car for the 45 minute drive home. When I did go home the next morning I laid down in the back seat with an ice pack on my tush and extra pillows. I was given a prescription for Vicodin (generic name is Hydrocodone). The first couple of days I had discomfort and mostly rested on my side, I couldn't bend or really do anything around the house. I really didn't feel that bad as long as I took the pain pills. Then on the 3rd or 4th day I really started to feel awful. It really started to feel very painful and uncomfortable which was no surprise after reading everyone's stories on the website. I had a lot of help for the first 6 days and I really needed it since I have 2 small children. During the first week, a few of the days I wasn't even getting relief with the pain medication. I went to the doctor a week after the operation and he said I was healing perfectly and wants to see me again in another month. He told me my tail bone was disjointed and pointed like the letter "V" and was also pushed forward. He didn't remove the whole tail bone. He said he removed about 2 inches which was the part that was disjointed already.

Starting on Sunday, about 9 days after the operation, I started to feel much better! I am only taking a pain pill at night and Advil during the day. I think Advil works better than the pain pills. I have been able to do anything I want to do around the house since I am no longer having any pain while walking, bending, etc. I am now able to sit forward. I am not driving yet since I can't put pressure on the surgical site without pain, however, it seems to be getting better. I also can't sleep on my back yet but sleeping has gotten much more comfortable!

If anyone has any questions, feel free to E-Mail me.

Susan

Updated 2000-02-21




Does anyone have menstruation problems due to coccyx injury?

Michelle - aldress@aol.com

I slipped on some stairs and hit my coccyx in April of last year. First I was told it was broken, then just bruised, then dislocated. I have had a cat scan which showed abnormalities, and then a bone scan 6 months after the fall which showed no broken bones.

I have had 1 coccyx injection which has helped with the pain somewhat in the coccyx, but still have severe sciatic nerve pain in one leg and my monthly periods are becoming unbearable, worse every month.

The doctors just tell me to take anti-inflammatories and wait for all the swelling to go down and then I should lose the sciatic nerve pain and the painful intercourse and period pains. This has been awful for my husband and children, and I am so blessed to have them.

The coccyx injection did let me walk without gait (limp) so I guess it did help there. Cant wait to be able to run again!

If anyone has problems with thier menses please e mail me. I would like to know if there is any success or not. Thanks for letting me let off steam and good luck to you all.

Michelle

Updated 2000-02-17




10 days post-op and doing fine

Kathryn - sota@sota.ca

Hi: I am so glad you have this site, information was hard to find on the subject of coccygectomy, advantages and disadvantages. Mine was broken badly in a skiing accident three years ago, and has never healed. I just had the surgery 10 days ago, and the recovery seems to be going well. I have stopped the pain pills, and am only using regular Tylenol a couple of times a day.

I only missed five days of work, and find that I can work just fine if I move around enough. I can sit for fifteen or twenty minutes now, then stand for awhile, sit on a different chair, etc. Driving is tough, but doable if I have to. I would advise most people to get off the pain killers as soon as possible after the surgery though, as I have found that even one or two pills with codeine will make my head foggy.

As I have always been very impatient with recovery periods, is there physiotherapy that will speed the return to normal, pain free living? Also, if doing something hurts, does that mean it is doing damage?

Kathryn in Ottawa, Canada

Updated 2000-02-14




Surgery scheduled - but chickened out

Margie Sharp - msharp@austin.rr.com

I was scheduled to have a coccygectomy on Feb 11, 2000, but have decided to cancel after reading the numerous recovery stories on this board. The main reason I cancelled my surgery is because my family & I have planned a trip for Easter Weekend to travel from Texas to Missouri and I fear that the recovery process would be too painful for travelling. The stories I've read indicate that the pain after surgery is extreme & lasts for many months. I am also concerned that surgery could worsen my existing pain. My doctor assured me that he has been doing this type of surgery for over 20 years and averages 1 - 2 per year and has a very good success rate. I am undecided, but will probably reschedule the surgery after April. I figure if I've been dealing with the pain since Feb 1996 (carnival slide accident), what's another few months?

My pain is such that it only hurts when sitting back on a sofa (similarly in a movie theatre chair); it does not hurt to sit at a dinner table or office desk chair. It also does not hurt while driving because I have great lumbar seats in my vehicle; though it hurts on occasions while travelling as a passenger because I tend to sit more relaxed, putting more pressure on my tailbone. I have no pain while standing or walking. Occasionally it hurts while lying in certain positions (sometimes I wake from sleep), but I generally can just shift to another position to relieve the pain. I am curious to hear what others have to say who have been through the surgery.

- Margie Sharp

PS from Margie, for those looking for an experienced surgeon:

His name is William P. Taylor, at the Central Texas Spine Institute in Austin, Texas; Phone 512-795-2225.

Updated 2000-02-09




Coccydynia, childbirth and pain relief

Gill - gill.home.uk@tinyworld.co.uk

My name is Gill and have had coccydynia for nine years, after a car accident. I have two children aged 7 and 4; my first child being of normal delivery which worsened the pain unimaginably.

In all the years of pain I have tried cortisone injections, ultrasound, all forms of oral medication, acupuncture, all to no avail.

All but one of the specialists told me the same thing, saying go away and live with the pain, only one specialist was prepared to try coccyx removal although there were many risks involved. Having thought it over carefully I decided against removal.

Being pregnant with a second child made the problem worsen. Having spoken to all concerned with child birth, it was recommended that I should have a planned caesarean due to my problem. I suspect not a lot of women with this problem realise that when giving birth naturally the coccyx moves to allow for the birth causing more pain than is necessary, having a caesarean proved to be a better choice than a normal delivery.

Four years down the line with the never ending pain, when walking, standing for long periods, lying on my back and stomach, driving all this effects every day things that people take for granted, I finally stumbled across something called 'The Bowen Technique', used by my local 'Physical Therapist'.

This involves sessions of 'resetting the body to heal itself', sounds ridiculous; but believe me it has had some effects; more than any other treatment so far; although it is still in the early stages, I can now find some relief from my coccyx, hip and buttocks, especially when this treatment does not involve any manipulation, instead consists of using various other parts of the body without any pain involved in or around the coccyx.

If there is any body who has tried or heard of this technique, I would like to hear from you and of your results.

Yours Gill,

North West (UK)

Note from Jon Miles:

A UK Bowen Technique site says this method is not massage, but:

The work consists of a series of gently rolling connective tissue moves, using a light touch and may be done through clothing. There are frequent important pauses between these moves, which give the body time to benefit from each set. By combining moves, both in placement and in combination, the practitioner is able to address the body as a whole or target a specific problem. A unique tool of the Bowen practitioner is "tissue tension sense," meaning the practitioner is able to discern stress buildup in muscle groups and then utilize Bowen moves to release that stress.

Updated 2000-02-06




Fish oil cured muscle pains

Sally Cowell - geofsal@bigpond.com

In order to cope with the painful coccyx I compensate by standing or sitting in awkward postures. This causes considerable problems with backache from standing. I sometimes sit on one cheek which gives me pain in stomach muscles. My most used sitting position is balanced on the chair edge which gives problems with the top/back of my legs. After taking fish oil for about a week all back ache and stomach muscle pains completely disappeared. The leg problems are greatly improved. I have no idea why this should work for me.

The improvement for me was dramatic, though it only cured the muscle pains, not the coccyx pain. I have no idea if the fish oil will help others, but as it is a food it does not have side affects and is not expensive. The brand name is Fishaphos it says it is natural fish oil. Some information on the side of the bottle: A natural fish oil concentrate for the temporary relief of arthritic pain and as a dietary source of essential Omega 3 Marine Triglycerides, Eicosapentaenoic Acid (EPA) and Docosahexaenoic Acid (DHA) which are often in short supply in a typical Western diet.

Updated 2000-02-01




Physical Therapy May Help!

"Christine Fitzgerald" - chrismfitz@mindspring.com

The APTA (American Physical Therapy Assoc) has a section of Physical Therapists that specialize in Pelvic Floor Muscle Rehab. If you can find someone in your area that has extra training you may find the relief your seeking.

Depending on the injury you may have a hypomobile or hypermobile coccyx. The muscles that attach to the coccyx may be in spasm or pulling your coccyx in one direction more than the other.

The nerve that is usually involved in the pudendal nerve.

Quick tip: try putting pressure between your "sit bone" and your rectum. Hold the pressure for 30 seconds and see if you get any slight relief. If yes you can try using a racquet ball instead, hold the pressure, don't bounce, if pain doesn't relieve in 20-30 seconds this may not be for you.

I am in the womens section of APTA and would encourage you to call 1-800-999-APTA to find someone near you who can properly evaluate your muscles!

Everyone is different and physical therapy may not be your answer but it is a good place to rule out muscle/nerve involvement.

Reply from Chris Longthorp:

I was interested to read the message from Christine Fitzgerald regarding pelvic floor exercises. I have had coccydynia for 22 months and have tried many things. Three months ago I saw a physiotherapist with specialist knowledge of the pelvic floor. She suggested pelvic floor exercises. I believe my condition has improved about 25% so far. (These exercises are very tedious and I rarely do them as regularly as suggested !)

Updated 2000-01-26




Recurring coccyx and related pain

Anonymous

My coccyx pain was secondary to a sacroiliac ligament sprain that went untreated. My pelvis twisted slowly out of shape and because my low back and hips hurt so much, I would slink down in chairs when I sat, and eventually that made my tailbone sore. It took a long time to correct this (about a year with the help of a physiatrist (not psychiatrist) who specializes in rehabilitation medicine, and a chiropractor. Just as I was almost completely recovered, I made the mistake of allowing the rehab doctor to inject Prolo into the sacrum to help stabilize it. For anyone suffering coccyx pain, I would strongly suggest staying away from this kind of injection. It completely reversed my recovery for 9 months or so. My anger at the doctor who caused this was so great I believed it kept me from getting better. When I finally chewed her out, my coccyx pain cleared up in four days, and was just fine for 4 or 5 months. But I pushed it too far with a long road trip, so now I'm a mess again - sore sacrum, low back pain, hip pain, and of course coccyx pain.

I've tried most all therapies except coccyx removal because it was advised against since I have not actually broken this bone. (It is the muscles attached to it that get so tight and sore.) I find what helps most is a combination of things: a portable sitting chair insert called a Sacro-Eze makes almost any chair or car seat more comfortable, especially if you are short, and is much more comfortable than a Tush Cush or donut. Also, another insert is called an Obusforme but it is mostly meant for leaving in a particular chair or car, it is not as portable.( Both are expensive though, but worth it - about $200 each). Also, I take a regimen of Esgic Plus and Vicodan daily. The Esgic Plus will relax muscles and reduce pain while leaving you clear headed and alert, and the Vicodan assists with some of the pain. I can function on this regimen as long as the doses are low. Believe it or not, sitting on gel ice-packs under a towel has reduced butt pain for me. You can carry them in an insulated sandwich pack. They seem to prevent a lot of pain. Antidepressants not only help with depression (and let's face it - thoughts of suicide!), but reduce pain sensitivity. A pain-management program can be helpful too - that's worth a try. And prayer, prayer, prayer!

I've had acupuncture, hypnosis, cortisone epidurals, trigger point injections, manual massage (yes, on the inside as well as the outside!), and pelvic floor rehabilitation. I can't say any of these was especially helpful, but that doesn't mean you shouldn't give them a try - everyone's case is different.

This is one of the most difficult situations I have ever faced, and certainly my first protracted bout with chronic pain. I've had it so long it seems like a way of life now. Working with it is the only thing I know how to do. And I think deep repressed emotion (regarding enduring this problem or other life situations) can somehow exacerbate it, though I'm sure it is not the only factor. But don't overlook it. It really helps to read about others suffering through this. I understand them and I take comfort in knowing they understand me.

Pain management

I would recommend a good pain management course to anyone who is suffering with chronic pain, of any kind. The one I'm in is run by a psychological practice that specializes in pain patients, but you can find them at hospitals or by a doctor's referral. A great book for learning to overcome pain is called MANAGING YOUR PAIN BEFORE IT MANAGES YOU by Margaret Caudill, MD, Ph.D. This book is used with the course I'm in. There really is a lot to learn about how the brain processes pain, and what you can do to affect that and cope better while waiting for "the cure"!

Best of luck to all.

Updated 2000-01-14




Will it get worse?

Atul Vaydia

Hello All!

I feel like a slight fraud posting a message on this site. I had a bad fall on the ice about ten days ago. Much to my amazement it did not appear to cause the damage I had thought it would. I have looked at the messages on this site and I don't have any discomfort either sitting or standing. However, accidentally placing my body weight on the precise spot that bore the brunt of my fall is excruciatingly painful. Also sleeping on my back is uncomfortable though not painful.

I have been a fitness freak for a long time and spend a lot of time stretching and doing weights. A friend who is a physio tells me that this helped me to cope with what should otherwise have been a very serious accident. He assures me that though I may have caused considerable damage to muscles in that area I should be able to heal myself within 3-6 months. Taking drugs, going to doctors for pointless X-rays etc is not something I want to do. At the same time I don't want to neglect the problem so I have continued with weights, stretching, massage etc without placing any strain on the injured area. What would be really useful to know from someone here is this - does the problem increase with time? In other words, am I likely to find that what I presently consider to be a lucky escape from a bad fall will come back to haunt me later on?

As I said, I do feel slightly fraudulent posting this message since the pain I have is so slight compared with some of the stories I have read here. Any feedback would be most welcome & in any case a speedy recovery to all.

Atul

Reply from Rhonda

Date: 2000 April 12

Just from my experience. I injured my tail bone 5 years ago (falling on the sidewalk during an ice storm). I had pain for several months, but then it cleared up. I was pain free for 3 years. I started getting pain about 2 years ago. After seeing my GP and a colon/rectal doctor I was finally referred to an Orthopedic Dr. He then took x-rays. They showed a crack from previous injury. I had a shot, which releaved my pain for 8 months, but the pain came back in December. I had another shot about 6 weeks ago, but it did not help. They are now suggesting surgery, but I do not know what to do. I hope your story does end with no pain.

Best of luck to you.

Rhonda, JBiggsBG87@cs.com

Updated 2000-01-08




After many years of pain, got relief from 'Clear Passage' in Florida

Anonymous

I had a fall off of a horse when I was 10 years old injuring my coccyx. At age 16 I had an automobile accident that threw me across the seat of the vehicle, later I had sharp sciatic pain, neck, and TMJ pain. Once I married I realized I also had vulvodynia pain. I have had 14 surgeries including lots of Gyn surgeries and TMJ, bilateral carpal tunnel, three level anterior cervical fusion surgery. I was divorced this year due to the vulvodynia.

Last year I went through some biofeedback and physical therapy that related my vulvodynia pain with my coccydynia. It was noted that my coccyx was anteverted. I did not received any long term relief. And as I mentioned in my last e-mail I was not sleeping very well at night due to some of my pain. I would get up at night searching for any information on coccydynia I could find. I was really considering having the coccyx removed. I came across the Clear Passage web site that you have on your web page.

On their web page it discussed both coccydynia pain and vulvodynia pain so I decided to make an appointment. That was the beginning of December. I have been very pleased with the results I am getting. I also know I am a difficult patient (as I've been told by Doctors). Because of so many different symptoms Doctors have had a difficult time treating me. When I went to Clear Passage both Belinda and Larry seemed very understanding to my situation and felt they could help me. I had felt improvement after the third visit and by the sixth visit it was unbelievable the relief I was getting. I have to travel three hours to get there and at first the ride seemed almost unbearable. But as each treatment has passed I do not dread the ride as bad.

Due to the pain I have, I've been unable to make any plans for my future. But in the last couple of weeks I have realized I will be able to pursue a career which is very exciting to me when I think of two years ago when my husband left me I was horrified because I knew at that time I could not make a living for me and my daughter.

I just wanted to share this with you because if anybody else could get pain relief and have a new future I think it will be wonderful.

Updated 2000-01-01

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