Injections lasted for 6 months, then 2 months, then not at all

Diwakar, Mumbai, India - shreyapds@gmail.com

Posted 2019-08-11

In the final term of my 9th grade (2016) I started suffering from coccydynia, I didn't know the name of the condition but I knew it was definitely my tailbone. I think it was mostly because of the school benches which are hard.

By the mid of April 2017 (10th grade) I started sitting for long hours on my chair (which was cushioned, but no use) but the pain persisted. I went to my orthopaedic Doctor who said that I should either go for cushions or injection. Fearing pain I chose tailbone cushion. I didn't take the cushion with me to school, fearing bullying.

January 2018 a month before my boards I took the injection so that I could sit for longer hours for the board exams. The effect of the injection stayed till July 2018. I started experiencing pain again in August and went for the injection again. This time it lasted for only two months.

April 2019, I again started sitting for long hours with two tailbone cushions but it wasn't helping. Couldn't sleep on my back either so started sleeping on my stomach (still do and chest and breasts pain af). The MRI kinda destroyed it as I was on my back for an hour.

Again went for an injection on 27 April 2019 but it didn't even give an effect for a day plus the pain of the injection is worse.

14 June 2019, I went for the anal manipulation and started exercising but now even after a month it still aches (it wasn't that bad) and since the last three days , the same excruciating pain from April is back.

Doctors said that I should not go for coccygectomy too. Now I don't know what to do.

Oh and did I mention that I'm in 12 grade now? Now you know so if anyone from India can help please do, I will be eternally grateful to you.

Update, 2020-11-08

I actually went ahead with the coccygectomy and it has failed. I have also had bursitis in the surgical area. I got it aspirated but nothing was wrong with the liquid that came out from it.

It's been one whole year after the surgery but there has been no change in the pain or rather has increased. I'm in constant pain for every second, every minute of the day. I have pain whenever I sit. Sometimes if there's an important work I force myself to sit, and if I'm alone I cry sometimes (lolz). And the pain is so much worse. So I don't cry for long. I had my third MRI done recently and I cried while I was inside three times. My surgeon and the doctor who suggested the surgery always say it's psychosomatic and that I should talk to a psychiatrist but the psychiatrist has already cleared me. I don't know what happened and why it happened but I really can't take the pain anymore or pain meds.

The meds dehydrate my body very much. In March this year, I got two kidney stones in my right urethra and now I have three in my right kidney I found in my recent ultrasound. Doctors have confirmed it was the painkillers. I'm tired of drinking water so much and just rushing to washroom. Now I'm also facing problems from muscle relaxants, they are causing constipation and stuff. I can't eat to my full (cuz I have to sleep on my stomach), can't sleep properly, definitely can't sit without crying.

My buttocks and muscles surrounding it are painful now, so are my hips. Since I put most of my body weight on them I am always in pain. I have tried dynapar injections they have never worked (I don't think they will ever work on me). I have tried pain patches and almost died from breathlessness. That was during my really important class 12th boards. I had to drink black coffee and have crocin every day till the effect wore off.

Now I really hope that the coccydynia was a sign of some kind of incurable cancer because this would have ended with chemo or dying in very less time. This is not the life I wanted. This is not the pain I wanted. Just crying inside isn't gonna help.