Pain started March 2016

Maggie, Essex, UK -

Posted 2018-02-25

I initially started suffering from numbness in my buttocks when I was sitting for periods of time. I had never realised that numbness is actually painful! After suffering the numbness for about 2 months I then also developed pins & needles in my buttocks. The pain when sitting was so uncomfortable & I was repeatedly sitting/standing but the pain & sensations never went away. By June I had developed excruciating pain when getting up from sitting, thought this is not going to get better on its own & booked a GP appointment. The GP kept asking if I had had a fall which I hadn't! I found it difficult to get them to understand how much pain I was in. Eventually in September GP sent me for x-ray but was told that it probably would not show up anything due to the area of the pain. They were right! I was prescribed numerous pain killers. Tramadol which made me itch all over, Naproxen, paracetamol/Codeine, non effective, Diclofenac, made me drowsy a little and finally Amitriptyline but was only prescribed for 2 months. Have really had no relief from the pain and have now stopped taking due to stomach upsets.

Colleague at work suggested Acupuncture of which I had around 15 sessions. I found this relieved pain for around 12 hours and then was coming back with a vengeance. Finally was referred to a pain Consultant at the Roding private hospital and he advised a MRI scan.

March 2017 - The result showed degenerative disc protrusion and annular tear of L4/L5 coccyx segments which was contacting the left L5 nerve root. I had Cortisone infiltration at end of March and thought wow! after 2 weeks of discomfort the pain had eased considerably for 3 months then came back with a kick. The procedure was repeated in September 2017 but this time suffered intense pain afterwards and no relief whatsoever. The Pain Consultant then referred me to a Neuro/Spinal Surgeon at Holly House. I met with him in December 17 and he recommended a surgical excision of the coccyx. I am booked in to have my operation on 7th March. My work have been extremely supportive, reducing hours when needed, supplying coccyx cut out chair as I am an Administrator, and also a stand-up, sit down desk. These have helped but the pain is constant whatever I do. I can no longer lay on my back and am constantly leaning on one or other buttock, or dragging my coccyx cut out cushion with me, this does not help either, but I go through the motions.

Saying that I am terrified of the operation and outcome is an under statement, but I have suffered so much I think it's worth the risk so I can try and get my life back on track.

Thank you for taking the time to read my experience so far. If you are suffering this pain I truly sympathise, please find a GP that will understand and get them to refer you on to a Specialist.

I will update this site once I have had the procedure.

Wish me luck.

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