2 1/2 years ago I began to get moderate pain on standing from a sitting position. I took over the counter medications, without little relief. After 2 months I contacted my GP, who referred me to orthopaedics at my local hospital. Seen by consultant, who recommended physio. I attended numerous sessions without any relief, if anything I felt the problem got worse. Was unable to sit properly without pain.
Referred back to ortho, sent for X-ray and mri scan. This showed dislocation. Referred to specialist for steroid injection, initially felt great able to stand and sit with only discomfort. Continued with steroid injections for a year, however each time got less effect. I was then seen by pain specialist who recommended change in meds and tens machine. By this time I had pain on walking, which is quite debilitating. Gradually got worse.
Eventually I had to take time off work, 2 months which is a long time when your a nurse and your colleagues rely on every member of staff. This was in January this year, seen by another orthopaedic consultant, who read my history. He looked at MRI scan and said in his opinion the dislocation was not repairable with steroid injection and would only delay surgery. Furthermore PT may have made the dislocation worse. Due to the damage he believed a full removal of the coccyx bone would be required.
I have since been off work again, increased analgesia medications. In constant pain most of the time. On waiting list and have recently been giving a date 26 August 2015. Can't come quick enough. I have a few questions from anyone who has had this surgery. Have read a few case studies and seems to be a lot of different recommendations.
• How long will the stay in hospital be?
• How soon after surgery can I have a shower?
• Will I require any walking aids?
• My husband works full time, therefore won't have help during the day. Will this be a problem?
• How long should I expect to be off work? (Full time staff nurse.)
Appreciate any advice
Note from Jon Miles:
I emailed more than a year after this story was posted, to ask for an update, as the long-term outcome of treatment is of great interest. In this case I did not get a reply.