Cindy, USA - firstname.lastname@example.org
My name is Cindy. I live in NC. I'm 38 years old. I had my coccyxgectomy over 8 weeks ago. I had went to an orthopedic surgeon for a tear in my shoulder. I had mentioned to him the pain I've had in my tailbone. It had gotten worse and was very painful to sit. So he ordered an mri. I had it done almost immediately. They called the next day and said they were sending me to Duke orthopedic oncology. There was a mass. The surgeon said the tailbone had to come out so they could biopsy the tumor. Less than a week later I was in surgery.
Before surgery I tried to not read up on the recovery after this surgery. I just was told it would be very rough and possibly very long. That it has been! I was very sick for about a month after. Draining dark fluid through an opening in my incision, infection and horrific pain. Here I am over 8 weeks out and still have a lot of swelling. The right side of my buttocks is bigger than my left and hard. I've tried to sit on the special pillow for a few minutes at a time. I have tried laying on my back and after 10 minutes it feels like a knife is twisting in me. I get froze in position and scream. I'm having cramping in my right leg down to my foot!
I'm losing hope. I contacted the surgeon and they're going to order a mri. I need some people to talk to about this! I've dealt with pain. I have a bladder disease called interstitial cystitis. I'm in pain everyday and push through it. I can't even push through this!
Please someone contact me! Thank you
Note from Jon Miles:
I emailed more than a year after this story was posted, to ask for an update, as the long-term outcome of treatment is of great interest. In this case I did not get a reply.