I am at the point where I am now desperate

Izzy - UK - isobel@webbkatz.com

Posted 2013-03-23

I am a 15 year old school girl, and I have had severe coccyx pain for exactly one year. I cannot sit down for longer than 2-3 minutes without having to awkwardly sit cross legged to relieve the pain, I can no longer sit for long amounts of time in a car, theatre, plane, cinema etc, and can no longer take part in fun activities such as go karting and various other things which involve sitting down. It all started in March 2013, when I did a Duke of Edinburgh expedition with some class mates, which involved me carrying an extremely heavy bag, full of food clothes and tent equipment. I did not notice any pain until about one week after the expedition, when I was on holiday, sitting on a hard bench, and suddenly started feeling some soreness around my coccyx area. At the time, I assumed I had just bruised it, and forgot about it. (Side note: I have never had any back issues before this.)

However the pain got worse and worse, and was almost impossible to ignore, and one night, it was so painful, I could barely move, all I could do was slowly walk around, sitting, lying and moving was beyond the question, so my parents took me to the doctors.

The doctors diagnosed me with coccydynia, gave me some pain relief tablets, and said there was no immediate cure - it would get better with time. After about a month, the pain went from being 100% bad, to about 90% bad, there was a tiny amount of relief, but I am still suffering with the excruciating pain today.

I decided to go to an osteopath, and had several sessions with her, as I wanted to try and get it sorted out before I went on holiday to Turkey in the summer, as the thought of having to sit for 4 hours on a plain in a tightly packed space, literally made me want to cry, the thought of the pain was horrible. Unfortunately, the osteopath did not work, so I decided to go back to the doctors, and they suggested an x-ray. The x-ray showed no sign of anything wrong with my coccyx, and again they sent me home empty handed.

My next step was acupuncture, a very different type of treatment, which I will admit I was very hesitant about. I had about 4 sessions of acupuncture, and felt no relief whatsoever, at this point, I was pretty hopeless.

So, we moved on to physio sessions, and this is the first time where the person I have seen genuinely is extremely interested and concerned about how much pain this is causing me, for such a young age. My physio is absolutely lovely, and I am still having sessions today. However, despite all her research and hard work, after 5 sessions of physio, I have felt no relief, and I sadly feel the pain is somehow getting worse again. The physio concluded that I had somehow, without realising, damaged my coccyx area when I was around 4 or 5, and doing D of E last year obviously aggravated it, and somehow the pain stuck.

The next step is to have an MRI scan, to see the tissue around my coccyx, and things like that, and then we will go from there. The physio has spoken about internal surgery, but apparently I am too young, and it is not always 100% effective.

Despite everybody's care and hard work, I am now pretty hopeless, I have had so many different treatments, and the fact that in just under a year there has been absolutely no relief in the pain whatsoever, I do believe I have got this injury for life.

Having this injury still gets me down today, you might think to yourself that surely its not that hard to just ignore a little pain in your lower back, but its honestly not like that. Sitting for longer than 5 minutes I'm in absolute agony, lying on my back is impossible, the thought of doing press ups is out of the question, and I am absolutely dreading my GCSEs - I have no idea how I am going to sit and concentrate on an extremely important exam, which lasts about 2 hours.

What is coccydynia? | Investigation and diagnosis | Treatment | Coping with coccyx pain | Find a doctor or specialist

Medical papers | Personal experiences | Links to other sites | Support groups | Site map