In November 2013 I started noticing pain in my tailbone when sitting. I didn't think much of it at first as I hadn't had a recent fall or any other incident where I could have hurt myself. By January 2014 the pain increased and I started to get pain in my lower back, and shooting pain in my legs. I had trouble sitting and was in constant pain. I had MRI scans and blood tests done, saw a neurologist, a rheumatologist, an orthopedic surgeon and the finding was coccydynia. This basically just means pain in the coccyx area, the cause unknown... I was given strong pain killers, and a local steroid injection which left me completely paralysed for a week and in much more pain. This has since ruined the tissue in the local area, my skin is now as thin as paper, even the touch of a clothes label feels like cuts from a knife, and there is no longer any fat to protect me, an area where I have enough pain as it is.
Months went on with more coccyx pain and stronger pain killers. I had physiotherapy treatments which helped getting through the weeks, and was told by an orthopedic surgeon to exercise the pain away.
One day in May, after having worked a long week, a was unable to get out of bed, I couldn't walk. The advice from the rheumatologist, (who had been following my "recovery") was to book me in for another steroid injection, or operate to remove the last tip of my coccyx. After my last experience with the injection, I knew it would just make it worse, and I was not ready for an operation. So I opted for more painkillers and spent 2 months in bed in the care of my family in Denmark. I did a lot of research and saw a local chiropractor in Denmark, who helped identify that my coccyx was bending inwards and treated me while I was with my family.
I did however stay in bed, and lost a lot of muscle, strength and hope. It was when I came across this site and found testimonials mentioning Dr Michael Durtnall (see Doctors and specialists in the UK, London), I realised I was not alone with this problem, and there was a way of getting better and strong again.
Flying back to the UK I was in a wheelchair (very painful sitting down, but couldn't walk), and I was not able to walk up my stairs at home.
My first appointment with Dr Michael Durtnall, I had X-Rays done, and finally an actual diagnosis. An old injury/fall, which has flared up for various reasons; bad posture, wrong chair/working posture, stress and so on.
Michael treated me straight away, and miraculously, that same day I walked up my stairs at home! No wheelchair, no support! It was a miracle!
During the last couple of months I have been going every week for treatments with both Michael and Physiotherapist Marta Dias De Oliveira. It is a long process to get everything back into place as my muscles keep working the opposite direction, and with an exercise programme I am finally getting stronger. I have good weeks and bad weeks, but patience is key, and knowing it's normal has really helped me. I can swim and even run gently now!
Michael and Marta have really changed my life as they are not only treating my body but also my mind. I have learnt that I can still feel pain even if my coccyx is back into place, which is something I can control with the right mindset. I have also learnt that being active helps, and the correct daily exercise is what will keep me in a good place.
I hope that everyone reading this will listen to my advice on not having a steroid injection, it only causes more pain in the long run.
I can highly recommend Sayer Clinics, Michael is worth flying to!
Note from Jon Miles:
I emailed more than a year after this story was posted, to ask for an update, as the long-term outcome of treatment is of great interest. In this case I did not get a reply.