I am at the end of my rope, suffering with coccydinia

Anonymous, USA

Posted 2014-06-30

I have been suffering with coccydinia for over 5 years. I am unclear as to how it happened. Perhaps horseback riding. But no specific occurrence happened that caused the immediate onset of the pain. It started dull and has built up to a 9-10.

I have had several orthopedic surgeons, spinal specialists, x rays, CT scans and 5 injections over the last two years. The very first injection was done by my ortho in his office. And it relieved the pain for 6 months. The last 5 provided less relief that lasted for shorter durations each time.

I am at the end of my rope. I have now seen a colorectal surgeon doctor cologne, at USC. And he had referred me to another pain specialist for a possible caudal block. I don't know if I will go ahead. As I have had so many injections already and want to do this naturally, if possible.

The only person who has been treating me that is doing wonders, is Eileen Johnson, of USC Physical Therapy (see Doctors and specialists in the USA, California). She is a pelvic floor therapist and is the only person who seems to know what is going on with me and knowledgeable on this condition. She has treated several people.

I am in treatment with her for two months now and although the pain still very high, I am hopeful with time we can reduce it. As she has had several patients worse off then me, improve. Go see Eileen. It's worth a shot. To try and fix the pain. I believe in her.. Will keep u posted on my treatment

Update, 2018-11-11

Since I last wrote, I had two other impair blocks, both done by Dr Foye. They last for 4-6 months at a time. I then got pregnant and couldn't travel so I had Dr Foye send notes and had a pain specialist at cedars Sinai do the same impar block after I gave birth (it did not work).

I got pregnant a second time. I was due to see the doc in London at the sayer clinic before getting pregnant and then couldn't travel, so I haven't had anything done in three years. And miraculously I'm better. I gained 60 lbs with my second baby and I am wondering that did something. Who knows. I had two c sections to avoid any further pain in the tailbone.

Knock on wood. The pain is still there - about a 2 now. I lost all the weight. And I feel ok.

I also could have just learned to move and sit to avoid the pain - for over 9 years now- so maybe my body has adjusted.

I have no miracle answer. Maybe - babies are miracles in more than one way.

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