Going for surgery 27 years after injury

Melissa - m.llong@hotmail.com

Posted 2011-05-29

When I was seven I sat down heavily on to a metal roller skate. Being a child I screamed the house down until I was told to shut up or I'd be given something to scream about. There was nothing to see though it hurt like hell. As it was the summer holidays I spent no time sitting down or when I had to for dinner or whatever I would fold my feet under my butt to relieve the pressure.

This went on for years throughout school, fast forward to my early 20's. By now I'm working in a pub as assistant manager and on my feet continually or sitting on them totally unaware this is not normal though by now my lower back is suffering as a consequence. At 24 I'm promoted to manager, Now I have to attend regular meetings and courses. Gradually it dawns on me as my knees and ankles start protesting at constantly being sat on that I can't keep up with this habit. Almost at once I'm aware of my coccyx and how bloody painful it is. I do not at this stage think there is anything much wrong nor do I draw any parallel with the roller skate incident. I assume everyone feels like this I must just be a wimp. I fidget on for another 10 years.

Finally I am 32 and at the doctors for something unrelated and mention the pain in my butt. I'm sent for physio- my physio says no point as been going on so long and mentions coccydynia and sends me back to my doctor. Series of useless steroid injections then finally referred to pain clinic in frustration.

Then tried various exercise programs, acupuncture, tens machines, anaesthetic patches, pain killers, anti inflammatory tablets and god may remember what else I'm sure I've missed things out. I'm now at my wits end and discover this website. (having avoided sitting for 27 years thus far I've naturally not bothered with computers up to this point! Now I have to use one at work) anyway thank you Jon. Armed with much info and a sense of hope I see my doctor who looks up your site on his computer and then and there refers me to an orthopaedic surgeon. My first appointment got me x rayed, MRI scanned, blood tested and another useless steroid injection. I did question why not dynamic x ray and got a blank look. A small alarm bell rings, What does this guy know if he has never heard of dynamic x ray? Of course only thing showing up on x ray is a prolapsed disc further up. I'm told it should be very painful? I then tell him how minor the back pain is in comparison to the coccyx. eureka! I have his attention and am passed up to his superior.

Finally at nearly 35 I'm looking at getting my coccyx removed, To be honest I'm about ready to do it myself with blunt spoon and no anaesthetic. Most of the reason its taken so long is my own fault, Put up or shut up was so heavily drummed into me as a child that I had not listened to me for nearly 20 years. Maybe physio may have been enough at 7 years old. Who knows? Anyway there is a light at the end of the tunnel now and I hope there Will be good outcome though I have been warned I may have lasting nerve damage etc if I can just enjoy a whole meal without fidgeting, groaning, having spasm's or having to go for a walk between courses or maybe enjoy a film at the cinema without worrying I'm ruining the film for others by fidgeting or kneeling or standing in the aisle then at least I will feel normal and stop dreading being asked to go out with my friends. Getting off the drugs before I'm a hopeless junkie would be good. Also being able to have a drink now and again instead of having to pretend I'm driving (which I've never learned to do because sitting too painful) so people don't pressure me to drink alcohol on top of medication. Just walking around straight rather than ever so slightly stoned on same medication would be real good. I want to live my life not just play at it. I'm sick of the constant pain and even more sick of being sick!

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