Lisa - firstname.lastname@example.org
I am a 30 year old Staff nurse in the UK, and this is my coccyx story! After the birth of my second child in July 2008, I developed severe coccydynia. I have tried several treatment since, all to no avail. I have tried several drug combinations, including anti seizure meds, Pre- Gabalin, Codeine, Tramadol, Etoricoxib etc. I underwent several unguided steroid injections, and eventually saw a lovely pain doctor, Dr Skinner, at James Cook University Hospital. He performed a Manipulation under anaesthetic with steroid injection.
Unfortunately I had a big flare up, apparently caused by the steroid, and developed some nerve pain post procedure (thankfully this has now gone).
My consultant was stumped at what to do next, and referred me to his colleague Dr Gulve, whom I have recently seen.
Dr Gulve said I have 3 options, as we are coming to the end of the road, treatment wise.
Option 1 - nerve block (inserts a needle into my coccyx under a light general anaesthetic and an electric pulse is passed through the needle to burn some nerves). This is only 50% effective, in his words. Not great odds
Option 2- A new procedure to insert 3 wires into my spine via epidural and implant a battery pack into my abdomen ( a glorified internal tens machine) but wires dislodge in more than a quarter of patients and the batteries have to be replace every 3-4 years. Not for me!
Option 3 - Coccygectomy - though my consultant said that I would find it difficult to find a willing surgeon, due to my age and it being a major operation.
I obviously went for option 1 and I am currently waiting for a date. I am not particularly religious but I pray to God it works. I have had 3 years of utter hellish coccyx pain, unrelieved by anything tried so far.
I have a wonderful supportive husband, but I am sure even he despairs of me at times, moaning about my back. I am scared it will not work. I am scared we will have to go to option 3 ( I have ruled out option 2 entirely). Sitting to standing is 10 out of 10 on the pain scale, it is horrendous, and I now have awful lower back pain (in part due to my job) due to sitting funny so as not to aggravate my coccyx.
I am at my wits end now, and hope I get some relief, and soon. If anyone wants to get in touch, please do, I know I'm not alone in this horrendous problem