Marilyn Morris - firstname.lastname@example.org
My name is Marilyn and I have suffered from coccydenia for about eight years now. It seemed to appear from nowhere and slowly just got worse and worse. The most painful part was when I went from sitting to standing.
I saw the doctor who had no idea what it could be. He sent me to an orthopaedic surgeon about 4 years ago. He didn't know quite what to do with me either but after an MRI showed up a Tarlov cyst he sent me to a neurosurgeon who said this could be the cause of the problem and suggested that I tried having it removed. So, I had an operation to remove the cyst and it made no difference to the pain whatsoever!!.
This surgeon referred me to a rheumatologist for cortisone injections. He told me (laughingly) that in France they actually remove the coccyx, inferring that we would never do anything like that here!! Anyway, the first cortisone injection worked after about 3 weeks and actually gave me my first relief for years. This lasted about 3 months. I then went back for a second injection and this only worked for about a month. I tried a 3rd and even a 4th but they did nothing at all to relieve the pain.
It was then that I found this fantastic website and after reading others stories I suddenly didn't feel like such a freak anymore. I found the name of a chiropractor in my area on the website and decided to try internal manipulation ( that brought tears to my eyes!!) but this didn't work either. In fact, if anything it made it worse.
There didn't seem to be any doctors on the website at that time in the London area so I decided to go to Paris to see Dr. Maigne. He is such a lovely man. He did a dynamic x-ray at his clinic and found that my coccyx dislocates itself whenever I sit and when I stand up it goes back to being completely normal. He said I would be a really good candidate for surgery and that the success rate was really good. I had an injection with him which took the edge off the pain but didn't take it away altogether. This also wore off after a few weeks.
I then happened upon a letter on the website from John Lang who had just had his coccyx removed in St Albans which is about half an hour away from where I live. I contacted John and felt encouraged to contact his surgeon, Mr Peter Dyson. I saw Mr Dyson privately in London and immediately felt confident with him. I am now scheduled to have my coccyx removed on August 5th at a private hospital in London (thank goodness for private medical insurance!). It's only five weeks away now and I am beginning to get really nervous, not so much of the operation, after all I'll be asleep for that, but more for the recovery.
Still I know I can't go on as I am as I can't even sit on my own couch anymore and when I do it brings tears to my eyes when I get up.
Anyway, I would just like to say a big thank you to Jon for this website and to John Lang for writing his story and putting me in touch with Mr Dyson.
I'll give you all an update after the op and if anyone has any tips or advice for the recovery, please let me know.
Here's hoping......Marilyn Morris