Tailbone pain starts at 16

Lora - lorab_3@hotmail.com

When I was 15, I had a pilonoidal cyst and had surgery to remove it, I was healthy for a year when I was suddenly had tailbone pain. I went to the doctor and found out I had a bone spur on my tailbone and I had it removed, but the pain never went away. So I was 16, a junior in high school and I could not even sit down. Luckily I went to a small private school and they would let me lay on the floor while in class. By this time I was seeing every specialist my doctors could think of to figure out what was wrong with me.

15 doctors later I found out that I had coccydynia. So by this time I was a senior in High school and my parents bought me a couch to lie on at school and I was doped up on codeine to control the pain. My doctors tried every medication, shots, physical therapy, TENS unit, ultrasound, laser, you name it, I tried it and I was only 17. Doctors did not want to remove my tailbone because they did not think the pain would go away once it was removed. I was starting to get very desperate I was to start college and I could not sit down without searing pain.

My doctors finally tried the combination of Daypro (anti-inflammatory) and Effexor (anti depressant). And it worked. I am now 24 and although on these medications, I can function like a normal person. I graduated college in 4 years and I am grateful for the 95% tailbone pain free life, but I don't want to live on these pills forever and when I become pregnant I cannot be on these drugs. My doctors have me reduce the meds I am on once a year to see how much pain I would still be in, and like usual the pain is unbearable.

If anyone has any suggestions from experience for what to do with the pain when I become pregnant I would love the input. I know I will be following doctors orders as to what is ok, but my experience with doctors is everything an experiment to see if it will work. I would like to be able to go to the doctor with suggestions. Thank you for reading my story and I hope that you will have a tailbone pain free life soon.


Updated 2004-10-10

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