DawnMarie - firstname.lastname@example.org
I began having tailbone pain about a year ago. I don't even know the exact time it started; I just know that I was having some pain when going from the sitting to the standing position. I ignored it for about six months and chalked it up to just an extension of my long bout with low back pain and sciatica.
After about the first six months, I noticed it was getting more and more painful. It even hurt while I was sitting. I brought it to the attention of my family doctor and she too just blamed it on my sciatica history.
A few months later; at work one night, I went from sitting to standing position and once on my feet, I collapsed right back down into my chair because the pain that shot through my tailbone was completely unbearable. I was in immediate tears and had a friend pick me up and take me to the hospital. They did some x-rays of coccyx and they revealed no fractures. They gave me some pain meds and muscle relaxers and sent me on my way.
I followed up with my family doctor a few days later and she sent me for more x-rays. She got the x-ray report about a week later and it showed some stenosis is in the pelvic region but negative for coccyx fracture. This left us at square one, so she made a referral to an Orthopedic doctor. Once I saw the orthopedic doctor, he also did x-rays of the coccyx area and he said on the lateral view, it looks like my tailbone had broken and curled under my spine… Or, it could be a tumor or growth on my tailbone, so he ordered a CT scan of the coccyx.
Now, only 2 days away from getting the CT scan results, I am a nervous wreck. I've been reading all kinds of information online regarding coccyx fractures and tumors of the coccyx. Unfortunately, not a lot of information is available on either topic, but was so glad to stumble on this site and read the stories of my fellow-tailbone pain suffers. I had begun to feel alone and like I was imagining this excruciating pain. But, after reading all of the other stories, I don't feel alone anymore.
It's very difficult to explain the pain to my roommate and my sons. I don't think they understand the magnitude of the pain that goes through my body when I sit and when I go from sitting to standing. It's a pain that is indescribable and unlike any pain I've ever experienced before. Sometimes they look at me like I'm crazy . . maybe they are tired of hearing me complain, but when something hurts this bad, it's hard to NOT vocalize about it.
Thanks for allowing me to share my story. I am a fellow sufferer and I understand the pain you all are feeling, and now I feel like there are people out there that understand my pain too.
Went to follow-up appointment and doctor said good news... no tumor. Bad news... radiology report says no fracture, however, the doctor said he still sees a shadow on the CT scan that he saw on a previous Xray that leads him to believe the tailbone is broken and curled under my spine. I say bad news because I just want to get an answer to the mystery of this intense pain. Anyway, he is referring me a doctor who specializes in tailbone issues and says he has an eye that sees things the radiologists don't see. Unfortunately, I cannot get in to see this doctor for 6 weeks!! So, until then... I will take it one day at a time and hope for some answers and some relief. Sometimes the frustration of not knowing what is causing the pain is more than the pain itself.
My last update in December indicated that I would be seeing a doctor that specialized in coccyx pain. As my luck would have it, before I could get in to see this doctor, he retired. I checked out the list of physicians on this site and found that there was one in my area, which had two success stories. So... I made an appointment to see him.
After a long wait to get in to see Dr. Keller at JOI, Florida (see Doctors and specialists in the USA), I finally saw him on 27 March. He was very thorough in his examination and didn't brush me off like previous docs had. He said that I could be a potential candidate for the coccyx removal surgery, however, before he would just start cutting on me he recommended a nerve block injection. He said the injection would serve as a diagnostic tool, which would let him know if surgery would benefit me or not.
I wasn't thrilled about the injection, but if it would provide relief or at least a diagnosis, I was willing to go through with it.
I had the injection yesterday. It really wasn't a painful procedure. They numbed the area first, then injected dye, under x-ray, to ensure the medicine would go into the proper ligament. The entire procedure took about 5 minutes, which included cleaning me up afterwards.
I have a pain diary that I have to keep for the next week, which means I will rate my pain on a scale of 1 - 10. I will then follow-up with Dr. Keller, who will then let me know if the surgery will benefit me or not. There is a chance that this injection could relieve the pain all together and then my treatment will be done. So far, I'm still in pain. Last night, the pain was more than I had felt since all of this began. Today, the pain level is lower than it has been in months!!
Will send another update after my next appointment!